Training materials
Target audience: rare disease patients representatives or Anyone interested in data standardization and/o... or Life sciences or beginner bioinformaticians or database managers
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Slides
Data Management Planning workshop for new Life Science Projects
• beginnerData management Deposition Data handling Data retrieval data management plan NeLS TSD metadata sensitive data publication data protection storage identifiers DMP licensing Compliance data life cycle - collect data life cycle - reuse data life cycle - analyse data life cycle - process data life cycle - preserve data life cycle - share data life cycle - plan -
e-learning
EJP RD MOOC "Diagnosing Rare Diseases: from the Clinic to Research and back"
•• intermediateRare diseases Rare Diseases & Research -
Video
Applying data standards to the harmonization of COVID-19 datasets from different sources
• beginnerData integration and warehousing Data integration Standards Standardised vocabulary data harmonization Ontologies -
Video
Useful ontologies for harmonizing cohort data
• beginnerData integration and warehousing Data management Ontology and terminology Ontologies Cohort data data annotation -
Training materials
Plant Phenotyping Data managment (MIAPPE)
• beginnerPhenomics Plant biology Data management Annotation Formatting Plant Phenotyping Data-format data sharing -
Webinar, e-learning
Webinars from the European Reference Network in Rare Hematological Diseases (EuroBloodNet)
•• intermediateRare diseases Rare Diseases & Research -
online modules, e-learning
Rheumatic and musculoskeletal diseases online resources from EULAR (European League Against Rheumatism)
•• intermediateRare diseases Rare Diseases & Research -
educational materials, e-learning
Patient-Centered Outcomes Research Institute (PCORI) Training : A Program for Rare Disease Patient Advocates
• beginnerRare diseases Rare Diseases & Research -
Webinar, Video, Presentation, Training materials, e-learning
Findacure's e-learning resources on rare diseases
• beginnerRare diseases Rare Diseases & Research -
Metadata Registry
FAIRsharing Educational Material
• beginnerDatabases Standards Data Policies FAIR