Findacure's e-learning resources on rare diseases
The portal is aimed at rare disease advocates, patient groups and charities, though anyone with an interest in rare diseases or advocacy is welcome to sign-up. It is completely free to use, and users are encouraged to contact Findacure with suggestions for new content.
The portal shares ‘how to’ and best practice on a range of topics – from building your team to running patient registries – to encourage efficient and sustainable growth of patient groups. It can be accessed from anywhere at anytime, though is currently only available in English.
Keywords: Rare Diseases & Research
Target audience: Patient Advocates , rare disease patients representatives
Resource type: Webinar, Video, Presentation, Training materials, e-learning
Scientific topics: Rare diseases