Training materials
Target audience: rare disease patients representatives or Anyone interested in data standardization and/o... or Industry or Undergraduate students
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Video
Ten simple rules for making training materials FAIR
• beginnerFAIR data Data handling FAIR ELIXIR-CONVERGE -
Series of videos, Video, youtube video
Introduction to research data management, data management planning and services provided by CSC – IT Center for Science
• beginnerDMP RDM plan research data management data management data management plan ELIXIR-CONVERGE CONVERGE -
e-learning
EJP RD MOOC "Diagnosing Rare Diseases: from the Clinic to Research and back"
•• intermediateRare diseases Rare Diseases & Research -
Video
Applying data standards to the harmonization of COVID-19 datasets from different sources
• beginnerData integration and warehousing Data integration Standards Standardised vocabulary data harmonization Ontologies -
Video
Useful ontologies for harmonizing cohort data
• beginnerData integration and warehousing Data management Ontology and terminology Ontologies Cohort data data annotation -
Webinar, e-learning
Webinars from the European Reference Network in Rare Hematological Diseases (EuroBloodNet)
•• intermediateRare diseases Rare Diseases & Research -
online modules, e-learning
Rheumatic and musculoskeletal diseases online resources from EULAR (European League Against Rheumatism)
•• intermediateRare diseases Rare Diseases & Research -
educational materials, e-learning
Patient-Centered Outcomes Research Institute (PCORI) Training : A Program for Rare Disease Patient Advocates
• beginnerRare diseases Rare Diseases & Research -
Webinar, Video, Presentation, Training materials, e-learning
Findacure's e-learning resources on rare diseases
• beginnerRare diseases Rare Diseases & Research -
Documentation, Exercise, Handout, Scripts
IBIP19 - Integrative Biological Interpretation using Proteomics (2019)
•• intermediateProteomics