Training materials
Target audience: rare disease patients representatives or Any student, postdoc or RA who has an interest ... or Anyone interested in simulation of metabolic mo... or General Interest or Ontologists or data steward / data manager
-
Training materials
ELITMa Module "Data Management Strategy" (Finland 28-29 June 2023)
• beginnerResearch Data Management RDM Strategy Training -
Tutorial
Tutorial on using existing PerMedCoE Building Blocks and workflows
•• intermediateBioinformatics Workflows Personalised medicine Building blocks -
Video, E-learning
FAIRification of external terminologies
• beginnerComputer science Data management FAIR data Medical informatics Ontology and terminology Clinical data Semantic Framework FAIR Terminology Ontology Versioning of Terminology -
Video, E-Learning
How to create a concept for the SPHN Dataset
• beginnerComputer science Data management FAIR data Medical informatics Design Standardisation and normalisation Clinical data Semantic Framework FAIR Concepts design Ontology Semantic inheritance SNOMED CT Conceptualization -
Tutorial
Tutorial on developing Building Blocks
•• intermediateBioinformatics Workflows Personalised medicine HPC building blocks -
Slides
Data Management Planning workshop for new Life Science Projects
• beginnerData management Deposition Data handling Data retrieval data management plan NeLS TSD metadata sensitive data publication data protection storage identifiers DMP licensing Compliance data life cycle - collect data life cycle - reuse data life cycle - analyse data life cycle - process data life cycle - preserve data life cycle - share data life cycle - plan -
e-learning
EJP RD MOOC "Diagnosing Rare Diseases: from the Clinic to Research and back"
•• intermediateRare diseases Rare Diseases & Research -
Webinar, e-learning
Webinars from the European Reference Network in Rare Hematological Diseases (EuroBloodNet)
•• intermediateRare diseases Rare Diseases & Research -
online modules, e-learning
Rheumatic and musculoskeletal diseases online resources from EULAR (European League Against Rheumatism)
•• intermediateRare diseases Rare Diseases & Research -
educational materials, e-learning
Patient-Centered Outcomes Research Institute (PCORI) Training : A Program for Rare Disease Patient Advocates
• beginnerRare diseases Rare Diseases & Research
- 1
- 2