Training materials
Difficulty level: Beginner
and Keywords: Rare Diseases & Research or SNOMED CT or data management plan
and Resource type: Series of videos or Computer Software or educational materials
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Series of videos, Video, youtube video
Introduction to research data management, data management planning and services provided by CSC – IT Center for Science
• beginnerDMP RDM plan research data management data management data management plan ELIXIR-CONVERGE CONVERGE -
educational materials, e-learning
Patient-Centered Outcomes Research Institute (PCORI) Training : A Program for Rare Disease Patient Advocates
• beginnerRare diseases Rare Diseases & Research