PDF with slides of the course in Spanish:
- Data management definitions
- DMP Objectives
- DMP Content and structure
- Competencies needed
- Practical session: DMP content analysis and evaluation

Topics covered:
- The diagnostic process and the types of genetic tests available for rare diseases
- The differences in rare genetic diseases patient pathways
- Technological advances for diagnostic research
- The role of collaborative studies and data sharing in rare diseases diagnosis
-...

This training session will provide the basics of protein structure determination and how this information is stored in databases. We will explore and search in online databases containing protein structure information. With the aid of the Yasara View program we will visualize the structure....

Webinars mainly address very rare diseases, complex disorders, highly specialized procedures and implementation of guidelines. At the same time, webinars' programs that are specifically addressed to patients intend to increase the awareness on a specific rare hematological disease among patients'...

MetabERN (rare inherited metabolic disease) finds education one of its most important goals. This includes both the education and specialized training of professionals involved in metabolic patient care, and patient education.
Webinars are broadcasted and available online. Previous webinars...

VASCERN propose short single video lessons (of approximately 3-5 minutes long) in which an expert talks about a specific topic that has been selected.
Topics developed are covering: Pediatric and Primary Lymphedema ; Medium-Sized Arteries (MSA); Heritable Thoracic Aortic Diseases (HTAD);...

The course will give you an awareness of genomic technologies and the data they generate.
The course draws on the experience of experts in clinical genetics and education at St George’s, University of London, St George’s University Hospitals NHS Foundation Trust and the Genomics Education...

GEN-EQUIP project combine education, primary care and genetics. Each module is based on a case and covers a different type of genetic condition you might see in primary care. Through its website, it offers genetics education free of charge to those who want continuing medical or professional...

EULAR (European League Against Rheumatism) has made substantial efforts and investment in developing e-learning opportunities with the newest developments in the field of rheumatology.
All EULAR courses are highly subsidized and managed by a scientific course committee responsible for the...

Granulomatosis with polyangiitis (GPA - formerly known as Wegener’s granulomatosis) is a rare vasculitis which commonly presents with symptoms related to the respiratory tract. This ‘Five minutes to change your practice’ screencast discusses the presentation of GPA, when to consider it as a...

Medics4RareDiseases (M4RD) provides e-learning for medical students and doctors about the fundamentals of rare diseases : Communication Skills, Covid19, Diagnosis, General Practice, Endocrinology, Events, Genomics, M4RD, Reseaarch, The unusual suspects, Rare Diseases, Training.
Their ultimate...

ERN TransplantChild is a European Reference Network (ERN) for Paediatric Transplantation.
These e-learning webinars focuses on various pediatric transplantation items.

Online training in pharmacovigilance and pharmacoepidemiology. Eu2P offers several types of courses to meet specific training needs : short course, certificate course, and master programme. Eu2P stands for "European programme in Pharmacovigilance and Pharmacoepidemiology".

eLearning course about the importance of good research data management (RDM).
The Danish National Forum for Data Management and the Danish Universities have developed the eLearning course “Research Data Management”. The course is divided into 3 independent modules : Introduction; FAIR...

The Turing Way is a lightly opinionated guide to reproducible data science.

Our goal is to provide all the information that researchers need at the start of their projects to ensure that they are easy to reproduce at the end.

This also means making sure PhD students, postdocs, PIs, and...

Background
The rapid identification of pathogens infecting livestock is essential to appropriately respond to the threat. The number and the variety of pathogen sequenced genomes have been growing more dramatically these recent years, because of the new sequencing technologies. This wealth of...

Background
The vast diversity of the pathogens affecting livestock demands a very specific diagnostic procedure in identification and characterization of each pathogen. In this context, the enormous amount of sequence and genotype data is being generated on animal pathogens, which is further...

This course will provide learners with an introduction to research data management and sharing. After completing this course, learners will understand the diversity of data and their management needs across the research data lifecycle, be able to identify the components of good data management...

Welcome to Research Data Management Training for Information Professionals!

This course will provide you with training on the research data management (RDM) topics listed below in a biomedical context. The material presented began as an NIH-funded research study to assess material for teaching...

This self-learning tutorial aims to present the UNIX environment and to provide the most basic commands to users with no or very little UNIX knowledge.
The examples are taken from various Biological fields but have been chosen carefully to be easily accessible to a wide audience.
At the end of...