Research Data Management and Sharing MOOC
This course will provide learners with an introduction to research data management and sharing. After completing this course, learners will understand the diversity of data and their management needs across the research data lifecycle, be able to identify the components of good data management...
Scientific topics: Data management
Keywords: Data Life Cycle, Data managment plan
Resource type: online modules
Research Data Management and Sharing MOOC
https://www.digitalresearchservices.ed.ac.uk/training/research-data-management-and-sharing-mooc
http://tess.elixir-uk.org/materials/research-data-management-and-sharing-mooc
This course will provide learners with an introduction to research data management and sharing. After completing this course, learners will understand the diversity of data and their management needs across the research data lifecycle, be able to identify the components of good data management plans, and be familiar with best practices for working with data including the organization, documentation, and storage and security of data. Learners will also understand the impetus and importance of archiving and sharing data as well as how to assess the trustworthiness of repositories.
University of Edinburgh
University of Carolina
Data management
Data Life Cycle, Data managment plan
Life Science Researchers
Researchers
Genetics education for primary care resources from the Gen-Equip project
Gen-Equip project is a project combining education, primary care and genetics. Its aim is to enable health professionals who are working in primary care to update their knowledge and skills in genetics. The aims is the long-term outcome of improvement in care of patients with genetic conditions...
Scientific topics: Rare diseases
Keywords: Rare Diseases & Research
Resource type: Documentation, Video, Training materials, online modules, e-learning
Genetics education for primary care resources from the Gen-Equip project
https://www.primarycaregenetics.org/?page_id=109&lang=en
http://tess.elixir-uk.org/materials/genetics-education-for-primary-care-resources
Gen-Equip project is a project combining education, primary care and genetics. Its aim is to enable health professionals who are working in primary care to update their knowledge and skills in genetics. The aims is the long-term outcome of improvement in care of patients with genetic conditions or concerns. They offer genetics education free of charge to those who want continuing medical or professional education in genetics.
Rare diseases
Rare Diseases & Research
Primary care doctors
health professionals
European Patients’ Academy Expert Training Course
Online course in medicines research and development. Not solely focused on rare diseases.
Scientific topics: Rare diseases
Keywords: Rare Diseases & Research
Resource type: online modules, e-learning, Training materials
European Patients’ Academy Expert Training Course
https://www.eupati.eu/eupati-training-course/
http://tess.elixir-uk.org/materials/european-patients-academy-expert-training-course
Online course in medicines research and development. Not solely focused on rare diseases.
Rare diseases
Rare Diseases & Research
Patient Advocates
rare disease patients representatives
Rheumatic and musculoskeletal diseases online resources from EULAR (European League Against Rheumatism)
Several online courses on rheumatic and musculoskeletal diseases encompassing several rare diseases.
Scientific topics: Rare diseases
Keywords: Rare Diseases & Research
Resource type: online modules, e-learning
Rheumatic and musculoskeletal diseases online resources from EULAR (European League Against Rheumatism)
https://esor.eular.org/totara/catalog/index.php?catalog_cat_browse=74&orderbykey=text&itemstyle=narrow
http://tess.elixir-uk.org/materials/rheumatic-and-musculoskeletal-diseases-resources
Several online courses on rheumatic and musculoskeletal diseases encompassing several rare diseases.
Rare diseases
Rare Diseases & Research
Health Care Professionals
health professionals
physisians
Patient Advocates
rare disease patients representatives