Short summary of the previous session
1.Scope of the DM
2.DMP Content and structure
Practical activities
3.Planning the DM of a simple project
4.DMP evaluation
Scientific topics: Data management, FAIR data
Keywords: ELIXIR-CONVERGE, DMP, data management plan, research data management, FAIR principles, DMP tools, DMP templates, tools, template, competency, DMP evaluation, evaluation, on-line, e-learning
Resource type: PDF, e-learning, slideck/ presentation
PDF with slides of the course:
- Data management definitions
- RDM and DM policy
- DMPs: content and competencies
- DMPs for European and National funded projects
Scientific topics: Data management, FAIR data
Keywords: ELIXIR-CONVERGE, DMP, data management plan, research data management, FAIR principles, DMP tools, DMP templates, tools, template, competency, on-line, e-learning
Resource type: PDF, e-learning, slideck/ presentation
PDF with slides of the course in Spanish
- Data management definitions
- DMP Objectives
- DMP Content and structure
- Competencies needed
- Practical session: DMP content analysis and evaluation
Scientific topics: FAIR data, Data management
Keywords: ELIXIR-CONVERGE, DMP, DMP tools, DMP templates, DMP evaluation, Data managment plan, research data management, FAIR principles, tools, template, competency, evaluation, online, e-learning, Spanish
Resource type: PDF, e-learning, slideck/ presentation
Writing a Data Management Plan
A good data management plan is crucial for any scientist and researcher. In this course, you will learn how to write one. You will find out how you can prepare, handle and share your research data.
Scientific topics: Data management
Resource type: e-learning
Through the Open Academy, EURORDIS empowers patient advocates to have the confidence and knowledge needed to bring their expertise to discussions on health care, research and medicines development. EURORDIS alumni engage in these discussions as equal partners, side by side with policy makers,...
Scientific topics: Rare diseases
Keywords: Rare Diseases & Research, Rare Diseases
Resource type: course materials, e-learning
In response to rare-disease patients’ desire to make research more meaningful to their community, PCORI created an online Program for Rare Disease Patient Advocates.
Scientific topics: Rare diseases
Keywords: Rare Diseases & Research
Resource type: educational materials, e-learning
The portal is aimed at rare disease advocates, patient groups and charities, though anyone with an interest in rare diseases or advocacy is welcome to sign-up. It is completely free to use, and users are encouraged to contact Findacure with suggestions for new content.
The portal shares ‘how to’...
Scientific topics: Rare diseases
Keywords: Rare Diseases & Research
Resource type: Webinar, Video, Presentation, Training materials, e-learning
This tutorial demonstrate how to use V-pipe - Bioinformatics pipeline for the analysis of next-generation sequencing data derived from intra-host viral populations.
For the purpose of this toturial, we use the sars-cov2 branch of V-pipe and analyse SARS-CoV-2 runs downloaded from NCBI SRA.
Scientific topics: Workflows, Genetic variation, Virology
Operations: Read pre-processing, Alignment, Variant calling
Keywords: coronavirus, NGS bioinformatics, Variant-calling
Resource type: Computer Software, workflow
There is a pressing need to integrate a broad range of innovative methodologies improving clinical trials in the setting of small sample population groups (SPG). The objective of IDeAl is to produce methods of general applicability irrespective of indication by Integrated DEsign and AnaLysis of...
Scientific topics: Rare diseases
Keywords: Rare Diseases & Research, Training material
Resource type: Webinar, e-learning
Writing a Data Management Plan can be new to you. ‘Learn to write your Data Management Plan’, an online self-study course, can help you decide how to take good care of your valuable research data.
During the course you are writing your DMP step by step. As a result you have written a DMP for...
Keywords: Data management plan, data management
Resource type: e-learning
Large cohorts, with potentially millions of participants, are needed to understand the genetic and molecular signatures of diseases, and they provide a cornerstone for the creation of personalised treatments. The ELIXIR::GA4GH Strategic Partnership will facilitate the responsible sharing of these...
Keywords: beacon
Resource type: Slides, Computer Software