Status Update Code of Conduct: Teaming up & Talking about it

Committed to the drafting of a Code of Conduct for the sector of health research according to Art. 40 GDPR, our initiative is advancing slowly but steadily. Throughout Europe, national jurisdictions differ to a great deal in their interpretations of the GDPR, especially in regard to its application in health research. This is due to some quite vague provisions (public interest, not incompatible clause) as wells as to numerous exemption/derogation clauses concerning the use of health data for research purposes, which encourage States to set up national rules – enhancing fragmentation. Notably, a Code of Conduct can help to bridge the harmonization gaps that may exist between Member States in their application of data protection law. On a practical level, a code is potentially a cost-effective method to achieve greater levels of consistency of protection as well as a mechanism to demonstrate compliance with the GDPR. By spring 2020, several hundred individuals representing around 90 organizations in the field of health research have indicated their interest and support for the Code of Conduct for Health Research. At this stage, this does not yet indicate an endorsement but means that they see a benefit in the development of such a code and are interested in partaking in the process. Additionally, several exchanges take place with national and sectoral codes in order to use synergies and finds ways for collaboration. This webinar is intended to inform you about the latest results.

The CINECA webinar series aims to discuss ways to address common challenges and share best practices in the field of cohort data analysis, as well as distribute CINECA project results. All CINECA webinars include an audience Q&A session during which attendees can ask questions and make suggestions. Please note that all webinars are recorded and available for posterior viewing. CINECA webinars include an audience Q&A session during which attendees can ask questions and make suggestions.

This webinar took place on 1st October 2020 and is part of the CINECA webinar series. It is best viewed in full screen mode using Google Chrome.

Licence: Creative Commons Attribution Non Commercial Share Alike 4.0 International

Keywords: GDPR, Healthcare research, data harmonization

Additional information

Resource type: Video

Authors: Michaela Th. Mayrhofer, Marta Lloret Llinares