PDF with slides of the course in Spanish:
- Data management definitions
- DMP Objectives
- DMP Content and structure
- Competencies needed
- Practical session: DMP content analysis and evaluation
Scientific topics: Data management, FAIR data
Keywords: ELIXIR-CONVERGE, DMP, data management plan, research data management, FAIR principles, DMP tools, DMP templates, tools, template, competency, DMP evaluation, evaluation, on-line, e-learning, Spanish
Elaboración de un Plan de Gestión de Datos (DMP): teoria y prácticahttps://b2drop.bsc.es/index.php/s/dGwxrkkArQEzXNFhttp://tess.elixir-uk.org/materials/elaboracion-de-un-plan-de-gestion-de-datos-dmp-teoria-y-practica-1cb1388d-cb82-458f-8f72-62bb55e66180PDF with slides of the course in Spanish:
- Data management definitions
- DMP Objectives
- DMP Content and structure
- Competencies needed
- Practical session: DMP content analysis and evaluationNadia TonelloData managementFAIR dataELIXIR-CONVERGE, DMP, data management plan, research data management, FAIR principles, DMP tools, DMP templates, tools, template, competency, DMP evaluation, evaluation, on-line, e-learning, Spanishproject managerResearchers
Short summary of the previous session
1.Scope of the DM
2.DMP Content and structure
Practical activities
3.Planning the DM of a simple project
4.DMP evaluation
Scientific topics: Data management, FAIR data
Keywords: ELIXIR-CONVERGE, DMP, data management plan, research data management, FAIR principles, DMP tools, DMP templates, tools, template, competency, DMP evaluation, evaluation, on-line, e-learning
Research Data Management Introduction for researchershttps://b2drop.bsc.es/index.php/s/QNMKXn7M3TQzwCthttp://tess.elixir-uk.org/materials/research-data-management-introduction-for-researchersShort summary of the previous session
1.Scope of the DM
2.DMP Content and structure
Practical activities
3.Planning the DM of a simple project
4.DMP evaluationNadia TonelloData managementFAIR dataELIXIR-CONVERGE, DMP, data management plan, research data management, FAIR principles, DMP tools, DMP templates, tools, template, competency, DMP evaluation, evaluation, on-line, e-learningResearchersPhD students
PDF with slides of the course:
- Data management definitions
- RDM and DM policy
- DMPs: content and competencies
- DMPs for European and National funded projects
Scientific topics: Data management, FAIR data
Keywords: ELIXIR-CONVERGE, DMP, data management plan, research data management, FAIR principles, DMP tools, DMP templates, tools, template, competency, on-line, e-learning
Data Management Plans and Policieshttps://b2drop.bsc.es/index.php/s/KpcJ2fJYqgf5HsHhttp://tess.elixir-uk.org/materials/data-management-plans-and-policiesPDF with slides of the course:
- Data management definitions
- RDM and DM policy
- DMPs: content and competencies
- DMPs for European and National funded projectsNadia TonelloData managementFAIR dataELIXIR-CONVERGE, DMP, data management plan, research data management, FAIR principles, DMP tools, DMP templates, tools, template, competency, on-line, e-learningproject managerResearcherspolicy officer
Discover the role of research, clinical investigation and data sharing in diagnosing rare diseases. This course offers an exploration of key questions around rare disease diagnostic research and issues today, as well as insights into patient experiences.
Scientific topics: Rare diseases
Keywords: Rare Diseases & Research
Resource type: e-learning
EJP RD MOOC "Diagnosing Rare Diseases: from the Clinic to Research and back"https://www.futurelearn.com/courses/rare-genetic-diseasehttp://tess.elixir-uk.org/materials/ejp-rd-mooc-diagnosing-rare-diseases-from-the-clinic-to-research-and-backDiscover the role of research, clinical investigation and data sharing in diagnosing rare diseases. This course offers an exploration of key questions around rare disease diagnostic research and issues today, as well as insights into patient experiences.Rare diseasesRare Diseases & ResearchPhD studentspostdoctoral researchersResearchershealthcare professionalsPatient Advocates rare disease patients representatives
Free online seminars on Thursdays related to rare epilepsies
Scientific topics: Rare diseases
Keywords: Rare Diseases & Research
Resource type: Webinar, e-learning
Educational webinars on rare and complex epilepsies (EpiCARE ERN)https://epi-care.eu/webinars/http://tess.elixir-uk.org/materials/epicare-ern-educational-webinarsFree online seminars on Thursdays related to rare epilepsiesRare diseasesRare Diseases & ResearchHealth Care Professionals health professionalsBiomedical researchers
The aim of these educational activities is to promote the interest on very innovative topics in order to stress among health professionals the cutting-edge advances in the field of Rare Hematological Diseases. One or 2 webinars per month, each of them lasting 45 minutes.
Scientific topics: Rare diseases
Keywords: Rare Diseases & Research
Resource type: Webinar, e-learning
Webinars from the European Reference Network in Rare Hematological Diseases (EuroBloodNet)https://eurobloodnet.eu/education/thursdays-webinars/http://tess.elixir-uk.org/materials/ern-eurobloodnet-thursdays-webinarsThe aim of these educational activities is to promote the interest on very innovative topics in order to stress among health professionals the cutting-edge advances in the field of Rare Hematological Diseases. One or 2 webinars per month, each of them lasting 45 minutes.Rare diseasesRare Diseases & ResearchHealth Care Professionals health professionalsPatient Advocates rare disease patients representatives
Target audience for the webinars are clinicians, genetic counsellors, clinical scientists and other genetics health professionals. The presentation itself lasts approximately 20-30 minutes, and viewers have the opportunity to send questions on the subject area which will be addressed in a...
Scientific topics: Rare diseases
Keywords: Rare Diseases & Research
Resource type: Webinar, e-learning
Education and Training webinars on genetic tumor risk syndromes (ERN GENTURIS)https://www.genturis.eu/l=eng/Education-and-Training/Webinars.htmlhttp://tess.elixir-uk.org/materials/genturis-education-and-training-webinarsTarget audience for the webinars are clinicians, genetic counsellors, clinical scientists and other genetics health professionals. The presentation itself lasts approximately 20-30 minutes, and viewers have the opportunity to send questions on the subject area which will be addressed in a question & answer session afterwards.Rare diseasesRare Diseases & ResearchCliniciansClinical Scientists health professionalsgeneticists
Educational videos on rare and low prevalence complex diseases of the heart (ERN GUARD-Heart)https://guardheart.ern-net.eu/experts/educational-videos/http://tess.elixir-uk.org/materials/ern-guard-heart-educational-videosEducational videos for expertsRare diseasesRare Diseases & Research health professionalsHealth Care Professionals
To share information and documentation with stakeholders involved in the field of hereditary metabolic disorders.
Scientific topics: Rare diseases
Keywords: Rare Diseases & Research
Resource type: Webinar, e-learning
Webinars on Hereditary metabolic diseases (MetabERN)http://metabern-educ.euhttp://tess.elixir-uk.org/materials/metabern-library-teaching-and-training-programmesTo share information and documentation with stakeholders involved in the field of hereditary metabolic disorders.Rare diseasesRare Diseases & ResearchHealth Care Professionals health professionals
ERN ReCONNET proposes free online training and education.
Scientific topics: Rare diseases
Keywords: Rare Diseases & Research
Resource type: Webinar, Video, e-learning
Educational webinars on Rare and Complex Connective Tissue and Musculoskeletal Diseases (ERN ReCONNET)https://reconnet.ern-net.eu/webinar/http://tess.elixir-uk.org/materials/ern-reconnet-educational-webinarsERN ReCONNET proposes free online training and education.Rare diseasesRare Diseases & ResearchHealth Care Professionals health professionals
Short single video lessons (of approximately 3-5 minutes long) and webinars.
Scientific topics: Rare diseases
Keywords: Rare Diseases & Research
Resource type: e-learning, Video
Webinars and Pills of knowledge Videos on rare vascular diseases (VASCERN)https://vascern.eu/what-we-do/pills-of-knowledge/http://tess.elixir-uk.org/materials/vascern-webinars-and-pills-of-knowledge-videosShort single video lessons (of approximately 3-5 minutes long) and webinars.Rare diseasesRare Diseases & Researchmedical studentsHealth Care Professionals health professionals
This course is available on FutureLearn and developed by Health Education England (NHS).
The course has been designed for healthcare professionals and science/medical students who have limited or no understanding of the who genome sequencing process and its many varied uses. Non-specialists who...
Scientific topics: Rare diseases
Keywords: Rare Diseases & Research
Resource type: e-learning
Whole Genome Sequencing: Decoding the Language of Life and Healthhttps://www.futurelearn.com/courses/whole-genome-sequencinghttp://tess.elixir-uk.org/materials/whole-genome-sequencing-decoding-the-language-of-life-and-healthThis course is available on FutureLearn and developed by Health Education England (NHS).
The course has been designed for healthcare professionals and science/medical students who have limited or no understanding of the who genome sequencing process and its many varied uses. Non-specialists who want to learn more about sequencing and genomic medicine are also very welcome.Rare diseasesRare Diseases & ResearchHealth Care Professionals health professionalsmedical studentsscience students
Gen-Equip project is a project combining education, primary care and genetics. Its aim is to enable health professionals who are working in primary care to update their knowledge and skills in genetics. The aims is the long-term outcome of improvement in care of patients with genetic conditions...
Scientific topics: Rare diseases
Keywords: Rare Diseases & Research
Resource type: Documentation, Video, Training materials, online modules, e-learning
Genetics education for primary care resources from the Gen-Equip projecthttps://www.primarycaregenetics.org/?page_id=109&lang=enhttp://tess.elixir-uk.org/materials/genetics-education-for-primary-care-resourcesGen-Equip project is a project combining education, primary care and genetics. Its aim is to enable health professionals who are working in primary care to update their knowledge and skills in genetics. The aims is the long-term outcome of improvement in care of patients with genetic conditions or concerns. They offer genetics education free of charge to those who want continuing medical or professional education in genetics.Rare diseasesRare Diseases & ResearchPrimary care doctors health professionals
Several online courses on rheumatic and musculoskeletal diseases encompassing several rare diseases.
Scientific topics: Rare diseases
Keywords: Rare Diseases & Research
Resource type: online modules, e-learning
Rheumatic and musculoskeletal diseases online resources from EULAR (European League Against Rheumatism)https://esor.eular.org/totara/catalog/index.php?catalog_cat_browse=74&orderbykey=text&itemstyle=narrowhttp://tess.elixir-uk.org/materials/rheumatic-and-musculoskeletal-diseases-resourcesSeveral online courses on rheumatic and musculoskeletal diseases encompassing several rare diseases.Rare diseasesRare Diseases & ResearchHealth Care Professionals health professionalsphysisiansPatient Advocates rare disease patients representatives
eLearning course about the importance of good research data management (RDM)
Scientific topics: Rare diseases
Keywords: Rare Diseases & Research
Resource type: e-learning
Research Data Management online courseshttps://vidensportal.deic.dk/en/RDMELearnhttp://tess.elixir-uk.org/materials/research-data-management-online-courseseLearning course about the importance of good research data management (RDM)Rare diseasesRare Diseases & ResearchPhD StudentsResearchersSupport Staff
Background
The rapid identification of pathogens infecting livestock is essential to appropriately respond to the threat. The number and the variety of pathogen sequenced genomes have been growing more dramatically these recent years, because of the new sequencing technologies. This wealth of...
Keywords: Blast, E learning, Multiple sequence alignment
Resource type: e-learning
BLAST and multiple sequence alignment (MSA) programshttps://www.mygoblet.org/training-portal/materials/blast-and-multiple-sequence-alignment-msa-programshttp://tess.elixir-uk.org/materials/blast-and-multiple-sequence-alignment-msa-programs-0b2b34d0-a157-49d4-a065-3dcad67ff99dBackground
The rapid identification of pathogens infecting livestock is essential to appropriately respond to the threat. The number and the variety of pathogen sequenced genomes have been growing more dramatically these recent years, because of the new sequencing technologies. This wealth of new data is very useful to the research field through the development of bioinformatics tools and databases that deal with large amount of sequences. Among them, BLAST (Basic Local Alignment Search Tool) and MSA () programs are very efficient for protein or nucleotide sequence similarity search.
The present course introduces the main biological databases, alignment tool BLAST and Multiple sequence alignments (MSA) programs, and interpretation of results.
Goal
The ultimate aim is the better management of animal diseases by preparing laboratory technicians, veterinarians and molecular epidemiologists from diagnostic and research laboratories of developing FAO and IAEA member states, to be self-sufficient in the data analysis by interpreting the phylogenetic trees and their relationships.
Target audience
Researchers, Laboratory technicians, veterinarians, epidemiologists from diagnostic and research laboratories of member states of IAEA and FAO. The concepts are explained in generalized way to help all academicians, researchers, students from all countries working in the field of molecular genetics and epidemiology.
AuthorsViral-zone, Swiss-Prot group at the SIB Swiss Institute of Bioinformatics
Patricia PalagiBlast, E learning, Multiple sequence alignmentBench biologistsBiologistsLaboratory techniciansResearchersVeterinarians2014-04-28
Background
The vast diversity of the pathogens affecting livestock demands a very specific diagnostic procedure in identification and characterization of each pathogen. In this context, the enormous amount of sequence and genotype data is being generated on animal pathogens, which is further...
Keywords: Animal pathogens, E learning, Phylogenetics
Resource type: e-learning
Phylogenetics of animal viral pathogenshttps://www.mygoblet.org/training-portal/materials/phylogenetics-animal-viral-pathogenshttp://tess.elixir-uk.org/materials/phylogenetics-of-animal-viral-pathogens-428432a3-67ca-4284-8962-fefc2ade75dbBackground
The vast diversity of the pathogens affecting livestock demands a very specific diagnostic procedure in identification and characterization of each pathogen. In this context, the enormous amount of sequence and genotype data is being generated on animal pathogens, which is further useful in understanding their pathogenicity and molecular epidemiology. The usage of this data in developing efficient molecular diagnostic tools needs basic understanding of the phylogenetic analysis. Phylogenetic classification, construction of trees, interpretation unveils the geographical distribution and migration of pathogens which helps in better management of animal diseases.
The present course is designed with introduction to phylogenetics, tools, building and interpreting trees and finally its application to veterinary diagnostics. Though the course is driven in veterinary aspects, the same implicates to the human and plant pathogen study.
Goal
The ultimate aim is the better management of animal diseases by preparing laboratory technicians, veterinarians and molecular epidemiologists from diagnostic and research laboratories of developing FAO and IAEA member states, to be self-sufficient in the data analysis by interpreting the phylogenetic trees and their relationships.
Target audience
Researchers, Laboratory technicians, veterinarians, epidemiologists from diagnostic and research laboratories of member states of IAEA and FAO. The concepts are explained in generalized way to help all academicians, researchers, students from all countries working in the field of molecular genetics and epidemiology.
AuthorsViral-Zone, Swiss-Prot Group at SIB Swiss Institute of Bioinformatics
Patricia PalagiAnimal pathogens, E learning, PhylogeneticsBench biologistsBiologistsLaboratory techniciansResearchersVeterinarians2014-04-28