Register training material
13 materials found

Difficulty level: Intermediate 

and

Resource type: e-learning 


Elaboración de un Plan de Gestión de Datos (DMP): teoria y práctica

PDF with slides of the course in Spanish:
- Data management definitions
- DMP Objectives
- DMP Content and structure
- Competencies needed
- Practical session: DMP content analysis and evaluation

Scientific topics: FAIR data, Data management

Keywords: ELIXIR-CONVERGE, DMP, data management plan, research data management, FAIR principles, DMP tools, DMP templates, tools, template, competency, DMP evaluation, evaluation, on-line, e-learning, Spanish

Resource type: PDF, e-learning, slideck/ presentation

EJP RD MOOC "Diagnosing Rare Diseases: from the Clinic to Research and back"

Topics covered:
- The diagnostic process and the types of genetic tests available for rare diseases
- The differences in rare genetic diseases patient pathways
- Technological advances for diagnostic research
- The role of collaborative studies and data sharing in rare diseases diagnosis
-...

Scientific topics: Rare diseases

Keywords: Rare Diseases & Research

Resource type: e-learning

Webinars from the European Reference Network in Rare Hematological Diseases (EuroBloodNet)

Webinars mainly address very rare diseases, complex disorders, highly specialized procedures and implementation of guidelines. At the same time, webinars' programs that are specifically addressed to patients intend to increase the awareness on a specific rare hematological disease among patients'...

Scientific topics: Rare diseases

Keywords: Rare Diseases & Research

Resource type: Webinar, e-learning

Webinars on Hereditary metabolic diseases (MetabERN)

MetabERN (rare inherited metabolic disease) finds education one of its most important goals. This includes both the education and specialized training of professionals involved in metabolic patient care, and patient education.
Webinars are broadcasted and available online. Previous webinars...

Scientific topics: Rare diseases

Keywords: Rare Diseases & Research

Resource type: Webinar, e-learning

Webinars and Pills of knowledge Videos on rare vascular diseases (VASCERN)

VASCERN propose short single video lessons (of approximately 3-5 minutes long) in which an expert talks about a specific topic that has been selected.
Topics developed are covering: Pediatric and Primary Lymphedema ; Medium-Sized Arteries (MSA); Heritable Thoracic Aortic Diseases (HTAD);...

Scientific topics: Rare diseases

Keywords: Rare Diseases & Research

Resource type: e-learning, Video

The Genomics Era: the Future of Genetics in Medicine

The course will give you an awareness of genomic technologies and the data they generate.
The course draws on the experience of experts in clinical genetics and education at St George’s, University of London, St George’s University Hospitals NHS Foundation Trust and the Genomics Education...

Scientific topics: Rare diseases

Keywords: Rare Diseases & Research

Resource type: e-learning

Genetics education for primary care resources from the Gen-Equip project

GEN-EQUIP project combine education, primary care and genetics. Each module is based on a case and covers a different type of genetic condition you might see in primary care. Through its website, it offers genetics education free of charge to those who want continuing medical or professional...

Scientific topics: Rare diseases

Keywords: Rare Diseases & Research

Resource type: Documentation, Video, Training materials, online modules, e-learning

Rheumatic and musculoskeletal diseases online resources from EULAR (European League Against Rheumatism)

EULAR (European League Against Rheumatism) has made substantial efforts and investment in developing e-learning opportunities with the newest developments in the field of rheumatology.
All EULAR courses are highly subsidized and managed by a scientific course committee responsible for the...

Scientific topics: Rare diseases

Keywords: Rare Diseases & Research

Resource type: online modules, e-learning

Granulomatosis with polyangiitis screencast

Granulomatosis with polyangiitis (GPA - formerly known as Wegener’s granulomatosis) is a rare vasculitis which commonly presents with symptoms related to the respiratory tract. This ‘Five minutes to change your practice’ screencast discusses the presentation of GPA, when to consider it as a...

Scientific topics: Rare diseases

Keywords: Rare Diseases & Research

Resource type: Video, e-learning

Medics4RareDiseases (M4RD) video library

Medics4RareDiseases (M4RD) provides e-learning for medical students and doctors about the fundamentals of rare diseases : Communication Skills, Covid19, Diagnosis, General Practice, Endocrinology, Events, Genomics, M4RD, Reseaarch, The unusual suspects, Rare Diseases, Training.
Their ultimate...

Scientific topics: Rare diseases

Keywords: Rare Diseases & Research

Resource type: e-learning

Transplantchild Webinars (ERN TransplantChild)

ERN TransplantChild is a European Reference Network (ERN) for Paediatric Transplantation.
These e-learning webinars focuses on various pediatric transplantation items.

Scientific topics: Rare diseases

Keywords: Rare Diseases & Research

Resource type: Webinar, e-learning

European training programme in pharmacovigilance and pharmacoepidemiology (EU2P)

Online training in pharmacovigilance and pharmacoepidemiology. Eu2P offers several types of courses to meet specific training needs : short course, certificate course, and master programme. Eu2P stands for "European programme in Pharmacovigilance and Pharmacoepidemiology".

Scientific topics: Rare diseases

Keywords: Rare Diseases & Research

Resource type: e-learning

Research Data Management online courses

eLearning course about the importance of good research data management (RDM).
The Danish National Forum for Data Management and the Danish Universities have developed the eLearning course “Research Data Management”. The course is divided into 3 independent modules : Introduction; FAIR...

Scientific topics: Rare diseases

Keywords: Rare Diseases & Research

Resource type: e-learning