4 materials found

Keywords: Rare Diseases & Research 

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Difficulty level: Beginner 

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Resource type: e-learning 


Eurordis Open Academy

The EURORDIS Open Academy currently encompasses the Winter School on Scientific Innovation and Translational Research, the Summer School on Medicines Research and Development, the Leadership School and the Digital School

Scientific topics: Rare diseases

Keywords: Rare Diseases & Research, Rare Diseases

Resource type: course materials, e-learning

Eurordis Open Academy http://tess.elixir-uk.org/materials/eurordis-online-trainning-modules The EURORDIS Open Academy currently encompasses the Winter School on Scientific Innovation and Translational Research, the Summer School on Medicines Research and Development, the Leadership School and the Digital School Rare diseases Rare Diseases & Research, Rare Diseases Patient Advocates Life Science Researchers Biomedical researchers
Patient-Centered Outcomes Research Institute (PCORI) Training : A Program for Rare Disease Patient Advocates

Tools and templates on the subject of "patient and research"

Scientific topics: Rare diseases

Keywords: Rare Diseases & Research

Resource type: educational materials, e-learning

Patient-Centered Outcomes Research Institute (PCORI) Training : A Program for Rare Disease Patient Advocates http://tess.elixir-uk.org/materials/patient-centered-outcomes-research-institute-pcor-training-a-program-for-rare-disease-patient-advocates Tools and templates on the subject of "patient and research" Rare diseases Rare Diseases & Research Patient Advocates rare disease patients representatives
Findacure's e-learning resources on rare diseases

Findacure’s e-learning portal is a central hub of information and training for rare disease advocates and patient groups. It contains educational materials, including written guides, animated videos, presentations and webinars, to help the establishment and growth of rare disease patient groups.

Scientific topics: Rare diseases

Keywords: Rare Diseases & Research

Resource type: Webinar, Video, Presentation, Training materials, e-learning

Findacure's e-learning resources on rare diseases http://tess.elixir-uk.org/materials/findacure-s-e-learning-video-library Findacure’s e-learning portal is a central hub of information and training for rare disease advocates and patient groups. It contains educational materials, including written guides, animated videos, presentations and webinars, to help the establishment and growth of rare disease patient groups. Rare diseases Rare Diseases & Research Patient Advocates rare disease patients representatives
Integrated DEsign and AnaLysis of small population group trials (IDeAl)

This series of webinars inform stakeholders about the new IDEAL methodology; the main achievements of each WP of the project and the main outcomes of the whole project.

Scientific topics: Rare diseases

Keywords: Rare Diseases & Research, Training material

Resource type: Webinar, e-learning

Integrated DEsign and AnaLysis of small population group trials (IDeAl) http://tess.elixir-uk.org/materials/integrated-design-and-analysis-of-small-population-group-trials-ideal This series of webinars inform stakeholders about the new IDEAL methodology; the main achievements of each WP of the project and the main outcomes of the whole project. Rare diseases Rare Diseases & Research, Training material