EJP RD MOOC "Diagnosing Rare Diseases: from the Clinic to Research and back"
Discover the role of research, clinical investigation and data sharing in diagnosing rare diseases. This course offers an exploration of key questions around rare disease diagnostic research and issues today, as well as insights into patient experiences.
Scientific topics: Rare diseases
Keywords: Rare Diseases & Research
Resource type: e-learning
EJP RD MOOC "Diagnosing Rare Diseases: from the Clinic to Research and back"
https://www.futurelearn.com/courses/rare-genetic-disease
http://tess.elixir-uk.org/materials/ejp-rd-mooc-diagnosing-rare-diseases-from-the-clinic-to-research-and-back
Discover the role of research, clinical investigation and data sharing in diagnosing rare diseases. This course offers an exploration of key questions around rare disease diagnostic research and issues today, as well as insights into patient experiences.
Rare diseases
Rare Diseases & Research
PhD students
postdoctoral researchers
Researchers
healthcare professionals
Patient Advocates
rare disease patients representatives